• How Long Do You Need?

    About a year apparently, or that is how long it took to go from maximalist bordering on hoarding to a not quite minimalist, but definitely under control regular amount of stuff type person.

    After a few years of chronic illness, and several more of untreated clinical depression the world decided to have a pandemic. What little life I had outside the house was shut down to zero, my carer duties became inescapable for even an hour, while my already minuscule ability for self care disappeared altogether. I got sicker, more insular, and eventually ended up under some pretty strict medical care. In a more normal period I probably would have been in hospital for quite a while, luckily I was quickly released to home care which enabled me to be ill and depressed at home and use all my remaining energy to care for two children with needs.

    Dining Room 2021

    With a year or so of expensive medication, various infusions, interventions, and monitoring I managed to get back from deaths door to merely unwell. Zero energy and the depression still untreated I started slowly (very slowly) transforming the space around me. I knew that mentally I had to take back some small element of control over my life, and I choose the part of my life I had to look at every time I opened my eyes in the morning, my house.

    I started out in incredibly small ways, a drawer of paperwork here, a pile of unwanted books there. Over the first few months I filled my bins (and sometimes the neighbors bins) every week. Donations where not an option at the time as most places were not taking them. Many car loads to the local tip wearing a mask and waiting in long queues happened during the first lockdown. Being trapped at home made it imperative to have clear spaces for the kids to do homeschooling and just live, and the more space I created the clearer my mind became about how I wanted to live.

    Lounge 2021

    Over that 12 months I probably sold/threw/donated over 50% of everything I owned (possibly more). I replaced many of my older appliances with new more efficient ones, and paired back my furniture to things I love.

    I won’t pretend there isn’t more to get rid of, and there have bee a few stumbles and hurdles in the last six months. The death of my father obviously threw a pretty big spanner in the works. On top of shock there was also a whole extra house full of things that I was now responsible for, and it nearly pushed me to breaking point several times. Still struggling with my physical health, and completely ignoring my mental state, I added clearing another house to the must do list.

    And that gets us to this year, my house is pretty much a pleasant organized place to be most of the time. The farm is still a disaster, but not a total disaster anymore. My mental health is a disaster, but not a total disaster, and my physical health? Well I haven’t passed out on a supermarket floor recently, so thats definitely an improvement.

    Lounge Room 2022

    So I’m applying the same method I used for the house, incrementally improving things. Throwing away things that aren’t working and finding things that do. The supervised gym sessions have helped me start, the routine has been slowly becoming habit, my fitness is improving slowly. My weight is going down, and my muscle is going up. And as my health improves and I start feeling better I’m craving more of it. Cutting out gluten is slowly having the desired effect of reducing stomach pain and other symptoms, and next month I will get tested for inflammatory markers to see if it’s all in head.

    Dining Room 2022

    If I managed to completely transform my home, and how I lived in it in 12 months, I should be able to do the same for my body. Working out is definitely less difficult than sorting through paperwork and receipts. Maybe I’ll even learn to enjoy it?

    And then who knows, maybe next year I’ll be able to take a look at my mental health?

  • Mountains or Icebergs…

    Just when you think you’re getting over things something happens that makes you realize you definitely have some work to do.

    I text with my ex-wife on semi regular basis, we share two kids and years of experiences so that’s kind of understandable. Normally it can go days in between responses, from both of us because we are both awful people who don’t respond to things immediately… and that’s fine. Last night I messaged about something that I thought we get a within a day or two response, definitely nothing urgent. But this afternoon when I hadn’t heard back, my brain decided to go back to trying to contact my father. And oh boy did it go back, full on flashback panic attack back. I was literally 30 seconds from jumping in the car to go check on her, which of course sent me into an even more serious PTSD state, when she called.

    She of course was freaking out that something had happened to one of the kids because my 200 messages were out of character. Which of course is a far more legitimate reaction than mine. She had been at the dentist all day, and then was trapped under her new kitten that had fallen asleep on her (totally valid reason).

    So I apologized for being a tad dramatic, and let her return to being furniture for cat. I think I sort of, kinda, almost explained my overreaction, but I’m pretty sure I haven’t explained to anyone how much “that day” messed up my brain and burned some pretty serious images and feelings directly into my head.

  • Stop the Ride…

    I’m having a hell of time focusing on things at the moment. Things are getting done, in a haphazard fashion, but it’s mostly the essentials and often even those are behind schedule. One of the kids had a shower and there weren’t any clean towels. I kind of feel things like that fall into the bare minimum of life category. Towels, teaspoons, and clean underwear are the low bar.

    I just had to stop typing to put on a 2nd load of washing, and check that I did push the start button on the dishwasher. Spoiler alert, I didn’t. I’m sure the whole health/trauma/exhaustion spiral is the main issue with my inability to concentrate, but also the weening off prozac, sleep that’s lightly peppered with night terrors, and a household schedule that is random at best, chaotic at worst, doesn’t help.

    The idea of getting back into some kind of routine is laughable at the moment. Everyday is a different set of plates to spin, and sometimes it’s easier to just let a few of them fall. Seems the laundry plate took a dive this week, along with the making some follow up appointments plate, and the returning messages plate. Someone has some sweeping up to do.

    I’m at a loss at the moment for any solution. Do I cut back nonessential things and just focus 100% on my health, and keeping the house functioning for the kids? Do I try and be more regimented so I can squeeze more stuff in to the day? Do I just keep going the way I am until it breaks me?

    I think I’ve reached the point where I can no longer run on adrenaline, and sheer bloody mindedness. It would probably be a good idea to just take a few days off and avoid the circus for a bit.

  • Holes…

    It’s been a hard day, which is why I’ve been in super distract myself mode. In the past I’ve never met a problem I couldn’t joke/spend/eat etc my way through. But I seem to have lost that ability, my dark humour that used to get me through things isn’t really working anymore, in fact I’ve lost the taste for it. I suspect I couldn’t spend enough to distract myself, and I’ve lost the taste for that anyway. I could probably still comfort eat myself to death in a few glutinous years, but it doesn’t bring that much comfort, and the accompanying intestinal discomfort is no longer bearable.

    I was thinking today that I have a 3-4 hour hole in my week now without my fathers “coffee and chat” visits. Obviously it’s not just a time hole, it’s a person shaped hole. The loss of the one person I could talk to about things without fear of judgement, without any need for editing, is not something that’s getting better with time.

    I miss having someone to talk to that wanted nothing from me, and I’m to jaded and damaged to seek that out… and way too skeptical to believe in it.

    So as the Passenger song says “we have holes in our hearts, but we carry on”.

  • Who ate all the pies?

    I’m going to be really mad if avoiding gluten fixes even 50% of my health problems. Not mad that it’s helping, but mad that not one doctor or specialist who have spent years pumping me full of tens of thousands of dollars worth of drugs didn’t just go “oh and maybe try skipping gluten for a bit to see if that helps”.

    Now I know it’s way to early to be making any assumptions about things, and placebo effects blah blah. But almost a week without any gluten and my gut is not screaming in pain and keeping me awake half the night. I’m also feeling less bloated, itchy, etc etc. Basically I’m feeling less of the laundry list of symptoms associated with non-celiac gluten sensitivity, so this is definitely something worth pursuing for a few months at least. It’s not like avoiding gluten has a downside, other than gluten free foods costing a premium, and my pathological need to consume pastry when in a cafe.

    No pie for me…
  • My Only Real Job…

    Another day of dealing with the seemingly never ending paperwork for my father’s estate. The court needs an occupation to put on my forms, because bureaucracy loves a label, so I just put carer because it’s simpler than trying to summarize the litany of various side hustles and small businesses I’ve shoehorned around the rest of my life. But it was only when I had to say it out loud did it actually sink in, carer has been my job my entire life to varying degrees, and varying levels of success, carer has been my role in every relationship I’ve ever had.

    I should probably be okay with that.

  • Sure, lets give that a whirl…

    You know what’s annoying? The naturopath giving you medical advice that your doctor should have considered. I’m pretty anti-woo, especially the basis in anything type, but I’m also willing to pick the eyes out of most things. I’m also more likely to believe a naturopath that falls into the more of a dietitian, than I am someone trying to sell me $60 vials of magic herbs.

    After hearing my list of symptoms (but before being told what the tests had found/ruled out) her advice was to cut out gluten for a few months, and see my GP for some tests, including liver scans.

    So I’m going sans gluten for a while. It will be interesting to see how my inflammation levels are at the next fecal test in 6 weeks. obviously I won’t mention this to my Doctor, as I’m seeing the naturopath behind his back, he doesn’t understand my needs.

    Besides if you are going to rely on doctors to fix everything, you are probably going to die.

  • Two Steps Forward…

    Apparently the prozac was doing something, so stopping cold turkey was a hella bad idea. Who knew? Oh right everyone, and they warned me. I’m now back on a 3/4 dose and I no longer want to peel my face off like that guy at the start of Nightbreed. I still suspect that mainly what the drug is doing is stopping me from getting withdrawals from not taking it. Don’t get me wrong it was 100% helping me from going all Sylvia Plath at various points over the past decade, it’s just not great for my creativity, or engagement with the world.

    I’m frustrated that I couldn’t just stop and ride it out, but it will probably take a while to get my own supply of serotonin firing again, so its a 12 week taper, which towards the end will involve some tiny scales and cutting pills into increasingly tiny amounts.

    I’m going to be really annoyed if I go to all this faffing about and I’m a depressed mess without the SSRIs and don’t get a bump in creativity to go along with my emo-ness. At the moment I’m just trying to manage the change of not taking a pill of an afternoon, cause I’m getting a bit headachy and headkicky by about dinner time. I’m trying to remind myself that even small amounts of progress is still progress.

    It’s only one step back…

  • Anecdotally of Course…

    I’m not the man I used to be, and I don’t have any science to prove it. One year ago I caught covid, and it knocked me on my butt. It took me months to shake the fatigue, brain fog parts, which might be why it took so long to notice the other changes.

    I’ve got absolutely zero evidence to back up my assertion that I’m not processing things as quickly as I did a year ago, after all I’m getting older and that happens. All I can do is speak of my lived experience, and I don’t feel like my brain is running at the same speed anymore, I mean it seems to get to the same solutions it just takes longer.

    What has come as a bit of shock is the, for want of a better word “personality“ changes, because those are observable by others who know me well. My mind seemed to just reevaluate many things I found important or interesting… and in many cases found them wanting. I simultaneously became more patient with somethings and had no time for others. Its was a weird few months of recovery and flux, and then my father died, and I had no idea what was covid and what was trauma, and no idea what would happen when they mixed themselves up into a cocktail.

    I’m not going to pretend I’ve got this figured out. However I do have a fairly strong belief that the covid got in and moved some stuff around that doesn’t appear to be returning to its original state. I’m not sure that’s a bad thing, but I’m avoiding another dose with everything I can, just incase it moves it around more, or worse back.

    I was listening to a book about depression and PTSD when the author said “it can’t be considered clinical unless it persists everyday for two…” and my head filled in YEARS instantly, turns out it was weeks. I hate it when that stuff happens, because my black sense of humor finds it hilarious and wants to make it into a bit. A bit that very few people find funny.

    My dad always found it funny, and he had proper PTSD with bells on. I probably do to, I’ve definitely soldiered through the 90day window without getting any help and really set up some bad triggers for myself. My amygdala is basically a hand grenade at this point just waiting for someone to accidentally pull the pin.

    I know it’s completely possible to be both better and worse at the same time, and while the brain skittles I got from covid actually slowed down the destructive bits of my brain and made me calmer and less tolerant of manipulative behaviors, the grief and shock has made me an anxious mess.

    I’m sure there is some solution out there, but at the moment I wouldn’t just mind two good nights sleep in a row.

  • Desk Cleanse…

    A cluttered desk is a sign of a cluttered mind. I’ve got no idea if that is true, but if my mind is anything like my desk there is definitely a problem.

    After trying to work in a space that looks more like somewhere you would purchase a mogwai than an office, Im ready for a change. I have spent the last two days ruthlessly editing the desk and its surroundings, to achieve clear air.

    Now we will see if it was the environment preventing me from working, or if the problem was 100% me, and not 75%.